Run organized to raise awareness about rare genetic disorder

Run organized to raise awareness about rare genetic disorder
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Hyderabad: On Sunday, the Cure SMA Foundation of India, a non-profit organization led by parents, hosted the 3rd edition of the Run for SMA – 2025 at Gachibowli Stadium. This event aims to bring attention to Spinal Muscular Atrophy (SMA), a rare and serious genetic disorder impacting children’s muscle strength and movement. If not diagnosed and treated, it can lead to respiratory failure.

Jayesh Ranjan, Special Chief Secretary to the Government of Telangana, flagged off the run. Bhavani Sri, Secretary of the National Turmeric Board, Archana Suresh, Director of the Telangana Social Impact Group, Dr. Radha Rama Devi, a Senior Consultant Pediatrician and Geneticist from Rainbow Children’s Hospital, and Mayur Patnala, Founder and Global CEO of the Nirmaan Organization, were among the honored guests.

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The Run included both timed and non-timed categories: 21K, 10K, 5K (timed), and a 5K non-timed run. About 2,500 runners participated enthusiastically, including students, corporate employees, medical professionals, and families affected by SMA, all coming together to support this important cause.

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